We have been fortunate to speak to some physicians that have treated ANE patients. Here is Dr Peter Rumey MD from Holland Bloorview Rehabilitation Hospital and his words regarding neurological symptoms and ANE.
On treating a recurrence in a patient with a previous ANE episode.
I am not sure I could be specific about warning signs for ANE specifically for MD’s in the ER , but I would say that in the case of families who take their child in for assessment when they are concerned about a deterioration in their child, if there has been a history of this and ANE in the past, highlight this and draw the parallels to the physician’s attention.
On treating a previously well child that has unusual symptoms accompanying a viral infection.
If there is a sign of neurologic deterioration in your child with an acute illness, such as double vision, weakness in one arm or leg, a new limp, an inability to stand, walk, speak or new drooling ( not related to teething) and the MD says it is just the flu. Ask them to explain how this is the flu; when the flu in the past has not lead to a localized weakness or imbalance of neurological function. Try to get them to take a second look and think outside of the box. I hope that this is helpful.
#ANEawarenessday #Virus #cytokinestorm #braininjury #AcuteNecrotizingEncephalopathy #ANEandMe #bloorviewchildrensrehabhospital
Find out more details at: http://aneinternational.org/ane/awareness-day/
We are on social media, you can follow us at:
Please visit our ANE Awareness Store