Author: aneawareness

International #ANEawareness Day 31st July 2018 Join Us and help us to Raise Awareness of Acute Necrotizing Encephalopathy ANE International believes that raising awareness of Acute Necrotizing Encephalopathy will save lives. With initial symptoms being typical of viral illness and many cases being from influenza, many ANE patients are initially turned away from hospital emergency rooms. In most cases the patient is already showing unusual symptoms which are overlooked. These may include double vision, unsteadiness of gait, vomiting and extreme lethargy, some are already having seizures which if initially brought under control are put down to febrile seizures. Some patients are diagnosed with Encephalitis or Meningitis if the symmetrical brain lesions are not recognised. No genetic testing is done and this puts the patient and their family at risk of further attacks. Our aim is for all Doctors to look a little deeper for neurological symptoms with a viral illness and be able to recognise the lesions specific to ANE on MRI. That parents are aware of neurological symptoms and when to take action. Not only may this save the patients life but also other members in the family if ANE is genetic. Early treatment is crucial in slowing brain inflammation and hence damage. Take Action on the 31st By :- Sharing our Awareness Day Flyers & posts on Social Media Follow Us on: Twitter@aneinternationa FaceBook https://www.facebook.com/ANEInternational/ Instagram aneinternational Using our Profile Picture Frame see – https://www.facebook.com/ANEInternational/ (pinned post) or edit Profile Pic/add frame View our Website, read our stories and become familiar with ANE ***AVAILABLE NOW*** ANE Awareness Day MERCHANDISE https://teechip.com/aneawarenss Fast Facts *ANE can be both genetic and non genetic. Genetic cases are susceptible to recurrence. *It is a severe & rapidly progressive acute disease. *ANE is typically triggered by virus most commonly influenza. Other viruses include HSV6, varicella, rubella, measles, rotavirus, enterovirus and coxsackie 9. ANE on the rare occasion can be triggered by bacteria. *It particularly affects previously well children. *Typical viral symptoms (fever cough etc) rapidly progress to neurological signs including seizure & coma. *Bi Lateral thalamic lesions are a distinctive feature on MRI *Outcomes can include severe cognitive dysfunction, cerebral palsy, vision and speech issues. *Mortality is high and almost all survivors are left with Acquired Brain Injury *The exact pathogenesis is unknown. *It is a highly under recognised Rare disease that is often misdiagnosed.

Let’s Create A Movement

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Find out more details at: http://aneinternational.org/ane/awareness-day/

We are on social media, you can follow us at:

FB: https://www.facebook.com/ANEInternational/

Twitter:  https://twitter.com/aneinternationa

LinkedIN:  www.linkedin.com/in/ane-international

Instagram: https://www.instagram.com/aneinternational

Get your ANE Awareness Wears

Let’s create a movement.

Get your ANE Awareness wears and jewelry. You won’t be disappointed.

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Please visit our  Store

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Find out more details at: http://aneinternational.org/ane/awareness-day/

We are on social media, you can follow us at:

FB: https://www.facebook.com/ANEInternational/

Twitter:  https://twitter.com/aneinternationa

LinkedIN:  www.linkedin.com/in/ane-international

Instagram: https://www.instagram.com/aneinternational

Get your ANE Awareness Wears

Let’s create a movement.

Get your ANE Awareness wears and jewelry. You won’t be disappointed.

thumb.jpg

Please visit our  Store

***

Find out more details at: http://aneinternational.org/ane/awareness-day/

We are on social media, you can follow us at:

FB: https://www.facebook.com/ANEInternational/

Twitter:  https://twitter.com/aneinternationa

LinkedIN:  www.linkedin.com/in/ane-international

Instagram: https://www.instagram.com/aneinternational

 

#ANEawarenessDay

Get Ready to join the #1stANEAwarenessDay #may #countodown? #ANECommunity,is honored to be joined by Universal Mankind  to help us lead this advocacy campaign. ANE International  shed a light on this #RareDisease.
We are #2 months away. Let’s rock all together!

 

 

You can follow us at:

FB: https://www.facebook.com/ANEInternational/

Twitter:  https://twitter.com/aneinternationa

LinkedIN:  www.linkedin.com/in/ane-international

Instagram: https://www.instagram.com/aneinternational

Please visit us at www.aneinternational.org