About our Logo

Our Logo

Our logo originally designed as a bare tree inside of a brain. A storm can leave trees looking like there will be no tomorrow. Major limbs may be broken or damaged, foliage can be shredded or stripped, or the bark may be torn or gouged. This tree after the storm resembles ANE warriors in their battle(s). Trees have many branches just like ANE has many variances and a tree has roots that are often hidden. The true root cause of ANE still remains hidden. We needed a truer representation of ANE. Artist, Mara Pianosi, created this beautiful logo as a representation of beauty, fragility and determination such as all ANE afflicted families show repeatedly over their journey. The butterfly represents the symmetrical brain lesions that are a distinct feature of ANE and the beauty that is found in change.

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