Our Vision

Our Vision

To make Acute Necrotizing Encephalopathy (ANE, ANEC, IIAE3, ADANE or ANE1) a highly recognized disease. For it to be as rare as it possibly can be; given its eradication is unlikely. That those affected and their families have access to social & moral support and be provided with informal education through shared family experience. To raise awareness in the medical community about this little known & rare disease and to educate the public about the importance of vaccinations through patient advocacy.

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