Raising Awareness that further research is needed into the causes of ANE.
In 2020, so much is still unknown about Acute Necrotizing Encephalopathy. Although genetic variants in the RanBP2 gene give some explanation to genetic patients, non genetic cases have no answers. It is thought that undiscovered gene variants or antibodies (as in auto immune disease) may yet be discovered in these patients. Research is ongoing.
ANE Awareness Day 2020 – #ANEandUs