Acute Necrotizing Encephalopathy Stories

Following a routine Tonsil & Adenoid removal on the 5th august 2016, a viral infection caused a rare neurological brain disease. It is called acute necrotizing encephalopathy (ANE).  ANE is very aggressive and has caused extensive damage to large areas of Tiaré’s brain.  We do not know how much is repairable…

The specific type of damage to Tiaré’s brain has only been reported in a couple of hundred cases.  She has been sedated for over a week and steroids and IV immunoglobulin were administered to halt this damage. There are a variety of outcomes ranging from death to full recovery.

“She is very sick, but doing an awesome job of trying not to be. Our little sunshine.” – Tam (Tiaré’s Mother)

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