Genetic Alliance UK is looking for UK based
#raredisease patients or carers to take part in a survey on Whole Genome Sequencing through the #NHS. If this applies to you, please consider taking part https://www.surveymonkey.co.uk/r/WGS-through-the-NHS
This survey aims to collect the views of rare disease patients and families on the introduction of whole genome sequencing (WGS) into the NHS. Whole genome sequencing (WGS) is a technology that looks at all of the genetic code in a cell (called the ‘whole genome’), in the hope of uncovering new understanding about the causes and best treatments for diseases. WGS promises to help increase knowledge of rare inherited diseases and cancer, in order to improve care and diagnosis.