Tobin’s Story

Tobin’s video is a joy to watch as he makes a remarkable recovery from ANE. His family who live in New Zealand have been hit very hard with ANE. Tobin’s older sister Lucia has had multiple episodes of ANE including one triggered by Chicken Pox and has suffered severe outcomes. This family have 4 children and all have the genetic mutation. Tobin’s parents were told at one point to take him home to die. Today he is an energetic young boy who has just celebrated his 7th birthday with his twin sister.

 #ANEawarenessday #RanBP2 #cytokinestorm #braininjury #AcuteNecrotizingEncephalopathy  #patientstories   #kiwistrong  #notmycircus  

Find out more details at: http://aneinternational.org/ane/awareness-day/

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