***WARNING: YOU MAY NEED TISSUES**
ANE is a sudden and shockingly devastating disease that leaves families often reeling & torn apart in it’s wake and this is especially true for our families that have lost a loved one to Acute Necrotizing Encephalopathy. ANE targets mainly the high risk pediatric population and the rate of lost lives is a desolating 30%. The death and loss of a child is frequently called the ultimate tragedy. Nothing can be more traumatising or heartbreaking. This is mainly due to the fact that the relationship between parents and their children is among the most intense in life. It feels unnatural to outlive a child. All bereaved parents lose a part of themselves.
This video is to honour our families and their loved ones.
The beautiful artwork by Rare Disease advocate and ANE supporter Mara Pianosi was created especially for all children & adults that have died from Acute Necrotizing Encephalopathy. We remember them.
You can reach their stories at: http://aneinternational.org/ane/stories/
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