In Loving Memory


ANE is a sudden and shockingly devastating disease that leaves families often reeling & torn apart in it’s wake and this is especially true for our families that have lost a loved one to Acute Necrotizing Encephalopathy.  ANE targets mainly the high risk pediatric population and the rate of lost lives is a desolating 30%. The death and loss of a child is frequently called the ultimate tragedy. Nothing can be more traumatising or heartbreaking. This is mainly due to the fact that the relationship between parents and their children is among the most intense in life. It feels unnatural to outlive a child. All bereaved parents lose a part of themselves.

This video is to honour our families and their loved ones.

#ANEandUs  #RareDisease #ANEawarenessday #braininjury #AcuteNecrotizingEncephalopathy 

You can read and see more stories at:


We are on social media, you can follow us at:






Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.