Acute Necrotizing Encephalopathy Stories

We brought him home to die – the hospital wasn’t doing anything for him by this time but miraculously he came out of his ‘coma’ and an amazing recovery followed. He still has issues but VERY improved compared to Lucia (his sister whom also has had encounters with ANE) and he leads an almost normal life. He can also be hard work but we are able to do most family things together.

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How a brain injury made me smarter: Ann Zuccardy at TEDxPhoenixville

Ann Zuccardy offers candid, witty conversation about life’s challenging moments and meeting them with creativity and humor. She provides insights gleaned from her personal struggle after a traumatic brain injury (TBI) changed her life.

Counseling After Brain Injury: 13 Things Want to Know But Are Afraid to Ask

Brain injury can change your life in many ways. Many people report feeling worthless, misunderstood, lonely, and frustrated after their injury.

This is an important tool for our recovering individuals and families.

Read more at: Couseling After Brain Injury: 13 Things Want to Know But Are Afraid to Ask

 

The Storm

Maybe ANE International’s families are more sensitive to this but there’s definitely times in our lives when we feel that everything good and bad is happening all at once.

#ANEawareness #IamaWarrior

Acute Necrotizing Encephalopathy Stories

Dayton Children’s Hospital
Published on Oct 15, 2012
Meet the Stager family from Troy, Ohio, whose 15-month-old daughter Bailey was saved at Dayton Children’s after she came down with a life-threatening virus.
The virus that Bailey contracted caused a brain abnormality called “acute necrotizing encephalopathy of childhood,” or ANEC for short. There are only seven documented cases of ANEC in the United States, and Bailey is the only survivor.

Bailey’s video showcases how the Stager’s family and friends, her team of doctors and nurses at Dayton Children’s and the entire community rally around the care and recovery of this little girl. See how you as a supporter of Dayton Children’s are also part of “Team Bailey.”

You will notice a lot of different statistic given by doctors in all different parts of the world.  As technology and communication improves and medical silos are broken, Acute Necrotizing Encephalopathy information is being shared and better statistic are being acquired.

Your Brain Injury is like your fingerprint

Now in competition with himself, former pro-snowboarder, Kevin Pearce, shares with us his story of suffering a traumatic brain injury. And the difference between winning then and winning now.

 

TBI & THERAPY

Here’s a great article on TBI and Therapy: What are the treatments for TBI?

Types of rehabilitation therapy may include:

• Physical therapy. This treatment works to build physical strength, coordination, and flexibility.
• Occupational therapy. An occupational therapist helps a person learn or relearn how to perform daily tasks, such as getting dressed, cooking, and bathing.
• Speech therapy. This therapy works on the ability to form words and other communication skills as well as how to use special communication devices if necessary. Speech therapy can also include evaluation and treatment of swallowing disorders (dysphagia).
• Psychological counseling. A counselor can help a person learn coping skills, work on relationships, and improve general emotional well-being.
• Vocational counseling. This type of rehabilitation focuses on a person’s ability to return to work, find appropriate opportunities, and deal with workplace challenges.^10,11
• Cognitive therapy. This includes activities designed to improve memory, attention, perception, learning, planning, and judgment.¹² For many people with TBI, cognitive therapy is among the most common types of rehabilitation.