Did you know that the flu is more than a contagious respiratory illness caused by the influenza viruses?  It’s more than fever or feeling feverish/chills, cough, sore throat, runny or stuffy nose, muscle or body aches, headaches, fatigue (tiredness) and maybe vomiting and diarrhea.  These are all bad but what can be worst? When is the Flu not just the flu? How about when the flu results in brain damage? Stay with ANE International and The END-FLUenza Project, this flu season and listen to the story of individuals and families that have been affected by the flu and the ensuing brain injury. #NOTjusttheflu #protectthevulnerable.


You can read more Emma’s condition by clicking on her photo.

Save the date 2019!

Save the date!

Global Genes connect rare disease patients, advocates and rare disease experts to help eliminate the challenges of rare disease. ⁦

Did you know that : only 15% of  rare diseases have organizations or foundations providing support or driving research.?


The heartbreaking moment two boys speak about their brother’s rare illness

This is the moment two adorable schoolboys spoke candidly and honestly about their brother’s rare illness before stepping up in front of the school to speak to their fellow pupils.

Haydon and Kayleb Hostick, who are six and 10, organised a special superhero day at Marfleet Primary School to raise money for their poorly younger brother Blake.

read more: https://www.hulldailymail.co.uk/news/heartbreaking-moment-two-boys-speak-1610608